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A campaigner who raised awareness of the rare genetic condition progeria, which causes those affected to age about eight times faster than average, has died at age 17.
The U.S.-based Progeria Research Foundation said Hayley Okines, from East Sussex in England, died Thursday at her home.
The group’s executive director Audrey Gordon praised Okines for her participation in drug trials and research that helped make progress toward treatment for the condition. Also known as Hutchinson-Gilford Progeria Syndrome (HGPS), symptoms such as growth failure, loss of body fat and hair, aged-looking skin and stiffness of joints show up during the first year of life.
“Today we remember her tremendous courage and determination,” the group posted on its website.
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Hayley Okines and Mom
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Click link below for article, video and social media:
http://www.nbcnews.com/health/health-news/hayley-okines-17-dies-rare-premature-aging-disease-n335311
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