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In the spring of 2023, after her third case of COVID-19, Jennifer Robertson started to feel strange. Her heart raced all day long and she could barely sleep at night. She had dizzy spells. She felt pins and needles in her arm, she says, a “buzzing feeling” in her foot, and pain in her legs and lymph nodes. She broke out in a rash. She smelled “phantom” cigarette smoke, even when none was in the air.
Robertson, 48, had a feeling COVID-19 might have somehow been the trigger. She knew about Long COVID, the name for chronic symptoms following an infection, because her 11-year-old son has it. But “he didn’t have anything like this,” she says. “His set of symptoms are totally different,” involving spiking fevers and vocal and motor tics. Her own experience was so different from her son’s, it was hard to believe the same condition could be to blame. “I just thought, ‘It’s really coincidental that I never got well, and now I’m getting worse,’” she says.
She saw a doctor in Cyprus, where her family was living at the time, and then in Saudi Arabia, where her husband was working. Neither visit yielded much. Then, after Robertson’s family moved to Scotland in the summer of 2023, a specialist there diagnosed with Long COVID. She is still sick—and a reinfection late last year set her back—but she has found some relief in treatments prescribed by her doctors, including heart medication and antihistamines.
Robertson’s story highlights the many challenges of detecting, diagnosing, and treating Long COVID. It affects people from all walks of life and produces a vast array of symptoms that can range in severity from mild to life-altering. And because there are so many forms Long COVID can take, it can be difficult for patients and doctors to know what’s going on.
That means many people aren’t getting diagnosed or treated, says Nisreen Alwan, a professor of public health at the U.K.’s University of Southampton who studies Long COVID (and has had the condition herself). Alwan’s research suggests there is “considerable self-doubt” among Long COVID patients, with many people questioning if they should get medical care or have the condition at all. That may be in part because media coverage tends to showcase a specific type of patient—someone who is very sick, potentially to the point of being bed-bound, and battling extreme fatigue and brain fog—so people with milder or more unusual symptoms aren’t sure whether their illness counts as Long COVID, Alwan says.
It’s hard to blame people for being confused. Long COVID is so broadly defined that virtually any unexplained health issue that comes after a case of COVID-19 and lasts at least a couple months could fit the bill. More than 200 symptoms have been linked to Long COVID—everything from insomnia and hallucinations to tremors and gastrointestinal issues—and they often look very different from those of an acute COVID-19 case. Further complicating matters, some people feel better for weeks or months after their initial infection before their health deteriorates.
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Mar 22, 2024 @ 13:45:23
It’s debatable whether or not Long COVID even exists.
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Mar 22, 2024 @ 16:37:28
Thanks for your comment and visit!
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